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SFNLife.org: Your Hub Awareness and Support on Complex Chronic Illness //

SFN Life

SFNLife.org: Your Hub for Awareness, Education, and Support on Complex Chronic Illness

At SFNLife.org, we are a growing community dedicated to raising global awareness and providing crucial information about complex chronic illnesses, including post-viral syndromes, Chronic Fatigue Syndrome (ME/CFS), Mold Illness, Chronic Inflammatory Response Syndrome (CIRS), Post-Lyme Disease Syndrome, and more. Whether you're seeking support, education, or advocacy, our mission is to connect individuals, share valuable insights, and empower those living with these life-altering conditions.

Explore our resources, engage with our vibrant community, and stay informed on the latest developments in the fight for better recognition and treatment of chronic illnesses. Join us on this journey to bring these invisible illnesses into the light, foster understanding, and improve the quality of life for those affected.

Stay connected through our YouTube channel, where we share in-depth discussions, expert interviews, and personal stories, giving voice to those battling chronic conditions. Together, we can raise awareness, advocate for better healthcare, and build a network of hope and healing.

Our mission is to empower and support individuals affected by post-viral illnesses, complex chronic conditions, and related syndromes. We are committed to raising global awareness, providing accessible and reliable information, and fostering a compassionate community for those battling Chronic Fatigue Syndrome (ME/CFS), Mold, Long Covid, Chronic Inflammatory Response Syndrome (CIRS), Post-Lyme Disease Syndrome, and other chronic illnesses in need of public voice.



What is SFN - Small Fiber Neuropathy?


Small Fiber Neuropathy (SFN) is a medical condition that affects the small nerve fibers in the body. Our nervous system consists of large and small nerve fibers, each serving distinct functions. SFN specifically impacts the small fiber A delta and C-unmyelinated nerve fibers, which are crucial for pain sensation, temperature regulation, and various sensory and autonomic functions.

A significant finding in SFN is that these small fiber nerves play a vital role in controlling the dilation of blood vessels. When these nerve fibers are damaged, it can lead to malfunctioning blood vessels, affecting overall blood flow and organ function. This can result in symptoms such as chronic pain, abnormal sweating, and gastrointestinal issues.

One of the primary reasons for creating this site is to provide comprehensive information that can help individuals suffering from SFN achieve a confirmatory diagnosis more swiftly, avoiding years of uncertainty.

This site offers curated informational links on SFN and related conditions such as Erythromelalgia, Cramp Fasciculation Syndrome, Lyme Disease, Long Covid, Mold Illness (CIRS), CFS/ME, Fibromyalgia, and many others. Our layout is designed to allow you to access the information you need quickly and efficiently. While we will continue to expand our resources over time, our goal remains to keep information simple, quick, and easy to understand.


What Cause(s) SFN

Below, are listed out several 'known' causes of SFN along with 'suspected' causes. Many cases, however, are idiopathic or cryptogenic in nature meaning the cause is not yet known.

Known Causes



Curated Videos Relating to SFN

Part of my intention for creating this site is to help people avoid the long wait to get from first symptoms to diagnosis, and to help others avoid the amount of suffering that I had to endure in order for the health problems I had to be recognized officially. I want others to know that they are not alone.

For me, it took many years...providers telling me they could not find anything wrong - so it 'must all be in my head'...it was so vindicating to be able to finally get a positive skin punch biopsy for Small Fiber Neuropathy - SIX YEARS after my symptoms began - with fighting and scratching every step of the way to get providers to believe me that there was a problem.

Even now, many years, over a decade after it started, some providers still question the results of the positive skin punch biopsy, or ask me why I believe I have a neuropathy problem. It is as if they do not even believe the objective medical test data. I truly do not understand why they act in the ways that they do unless directly influenced by money and the political nature of our existing healthcare system, and those things must change. For-Profit Healthcare Should Be Against The Law!

I should not have to continue to endure the way the medical system treats patients with hard to treat diseases, and neither should you! SFNLife.org, this website, is an attempt to help people who suffer from this condition/comorbidities, and related conditions, to assist their providers in ordering proper testing to determine what actually is happening, and to provide support for others dealing with all complex and chronic illness issues that the medical community tends to ignore, or gaslight patients that are suffering greatly - including those with Long Covid, Acute Covid with development of related illnesses, or Covid Vaccination injuries, Post Viral Illness Syndromes, and more.

Things must change. This is the way I have chosen to aid in that change...by providing a website that I hope will become a widely sourced place of communication, and a necessary foundation for building a bridge between medical providers and patients who are too ill to do too much. These people, people like myself, need to be able to focus on healing...not on trying to convince providers that there are true problems!

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Featured Video(s) of the Week

Patient Experiences

While this site is a work-in-progress, and will always continue to evolve...an important part of getting information to the public is having patr stories in a public way. Here, you will find information on what people have gone w they are doing, experiences they have had, and more.

Questions/Comments/Contact

To contact sfnlife.org, please follow the link below, and complete the form. Thank you for your interest, observation, and thoughtful viewing.